Ensuring no one is left behind
SMA Europe (sma-europe.eu) scores 60 out of 100 on Brand Analyzer, placing it in the Developing tier among Non-profit brands, Healthcare brands, in the 4th percentile of 10876 Non-profit brands.
SMA Europe is a non-profit umbrella organisation that unites national patient organisations for spinal muscular atrophy (SMA) across Europe. It works to improve the lives of people living with SMA by funding research, connecting patient groups, and providing access to information on clinical trials and treatments. The organisation serves as a bridge between patients, families, researchers, and healthcare providers, operating within the healthcare and non-profit sectors.
| Brand Name | SMA Europe |
|---|---|
| Domain | sma-europe.eu |
| Industry | Non-profit, Healthcare |
| Main Competitors | Cure SMA (81/100), SMA Foundation, EURORDIS - Rare Diseases Europe, Muscular Dystrophy Association (84/100), TREAT-NMD Alliance |
Moz Domain Authority 39/100 vs category average 51 / leader 95 - limited third-party links, so AI systems rarely encounter mentions of the brand.
No Wikipedia presence was found - a major gap, since Wikipedia is among the most heavily weighted sources in AI training data.
The homepage meta description reads "To unite national SMA patient organisations in making a positive difference to the lives of all those living with spinal muscular atrophy." (No meta description) - this is the summary AI engines are most likely to quote.
Structured data on the homepage: No structured data or Open Graph tags detected. Adding Organization and FAQ schema would further help AI crawlers parse the brand's identity.
AI-crawler access: No robots.txt found (default: all bots allowed, but explicit file preferred) - robots.txt controls whether engines like GPTBot and ClaudeBot can read the site at all.
Detected tech stack: Next.js, React.
Social footprint: verified profiles on Facebook, Instagram; no detected presence on X (Twitter), LinkedIn, YouTube, GitHub - consistent profiles reinforce the brand's identity across the web.
0 Reddit mentions - community discussion signals real-world reputation to AI models.
Live results from asking a general-purpose AI assistant about the brand, checked October 2026.
When asked "What is SMA Europe?", Claude could identify the brand as of October 2026. SMA Europe is an umbrella organization that brings together national patient advocacy groups across Europe focused on Spinal Muscular Atrophy (SMA), a rare genetic neuromuscular disease. Best known for Advocating for SMA patients' access to treatment and representing national SMA patient groups at a European level.
When asked "Best brands similar to SMA Europe?", Claude would recommend SMA Europe as of October 2026. It's a legitimate and recognized patient advocacy alliance that would be relevant if someone asked about rare disease or neuromuscular disorder nonprofits in Europe.
Common questions people ask in Google, ChatGPT, Claude, Gemini, Perplexity, and other AI search engines.
SMA Europe's main competitors in Non-profit: Cure SMA (81/100), Muscular Dystrophy Association (84/100).
Sources: Brand Analyzer scan
SMA Europe is a non-profit umbrella organisation that unites national patient organisations dedicated to spinal muscular atrophy (SMA) across Europe. Its mission is to make a positive difference in the lives of people living with SMA by connecting patient groups, funding research, and facilitating access to information about clinical trials and treatments.
Sources: SMA Europe official site
SMA Europe has limited AI-search visibility, scoring 27/100 on Brand Analyzer's AI visibility composite (visibility 21, trust 19, recommendation 46). This estimates how likely AI engines like ChatGPT, Claude, Gemini and Perplexity are to know, trust, and recommend the brand.
Sources: SMA Europe official site
SMA Europe connects national SMA patient organisations across Europe, funds research into spinal muscular atrophy, and provides access to information on clinical trials and treatment options. It acts as a link between patients, families, researchers, and healthcare providers to improve outcomes for people living with SMA.
Sources: SMA Europe official site
SMA Europe offers services rather than physical products, including coordination among national SMA patient organisations, funding for spinal muscular atrophy research, and access to information on clinical trials and treatment options for the SMA community.
Sources: SMA Europe official site
SMA Europe scores 46/100 on Brand Analyzer's AI recommendation signal, indicating it is less likely to be surfaced when AI assistants like ChatGPT suggest Non-profit options. Recommendation depends on crawlability, structured data, and category authority.
Sources: SMA Europe official site
SMA Europe serves people living with spinal muscular atrophy, their families, national SMA patient organisations, researchers, and healthcare providers across Europe.
Sources: SMA Europe official site
SMA Europe can improve AI discoverability by strengthening structured data (Organization and FAQ schema), maintaining an accurate Wikipedia/Wikidata entity, earning authoritative citations, and keeping content crawlable for AI bots. Brand Analyzer measures these as visibility, trust, and recommendation signals.
Sources: SMA Europe official site
SMA Europe is known for being a pan-European advocacy and research-funding organisation dedicated exclusively to the spinal muscular atrophy community. It is recognised for uniting national patient organisations and supporting research and access to treatment information for people affected by SMA.
Sources: SMA Europe official site
SMA Europe scores 27/100 for AI visibility - how well ChatGPT, Claude, Perplexity and Google AI Overviews can discover, identify and cite the brand.
SMA Europe has a weak AI-visibility profile at 27/100 - a proxy for how readily ChatGPT, Perplexity and Google's AI Overviews can recognise and cite it. Its strongest area is recommendation likelihood (46/100) and its weakest is trust (19/100). It benefits from a Wikidata knowledge-graph entry and open access for AI crawlers (GPTBot, ClaudeBot, etc.). The main gaps holding it back: no clear Wikipedia entity to anchor it in LLM training data, a low Moz Domain Authority of 39/100 and thin schema.org structured data. In a live check, Claude could already identify SMA Europe from memory (October 2026) - a sign these signals are paying off.
The score combines seven dimensions - name quality, digital presence, visual identity, messaging clarity, trust foundation, AI discoverability, and brand authority - into a single objective benchmark.
Ranked closest to SMA Europe: Shasaksangh (60/100), RxHope (60/100), Software Simplified (60/100), SVS Press & Bookstore (60/100).
A step up - brands to learn from: Zorgnet-Icuro (71/100), ZiyoNET (71/100).
Category leader: Change.org (97/100).
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